BREAKING NEWS

URGENT: We have a valuable and most important Post Stroke Qualitative Study Questionnaire for those who have had a CADASIL related Stroke and one for those who have had General related Stroke. This study is being carried out by the ACSN in conjunction with our partner the University of Technology Sydney. Click here for more information.

 

The Australian CADASIL Support Network (ACSN) is an exciting initiative to connect patients, families and leading clinicians as we work towards our mission: achieving improved health outcomes for those of you with CADASIL and like disorders, and to provide a network of ongoing, mutual support, whether you be a patient, family or carer.

You, the patient, will guide the directives in the health outcomes you want to see and help to increase disease awareness both within the medical community and outside of it to the general public. In addition, along with you, we seek to drive and encourage the translation of scientific knowledge into the most up-to-date and highest level of clinical best practice available.

The ACSN arose from a collective recognition that collaboration between patients, their families, clinicians, and research scientists is essential if we are to achieve these desired outcomes.

Please take a moment to take one of our surveys to assist our research:

PATIENT SURVEY FOR GENERAL STROKE PATIENTS

CADASIL PATIENT SURVEY

Survey for people who have CADASIL and have had a stroke:

Have you been diagnosed with CADASIL and have had a stroke?

If YES, would you be interested in completing a survey to describe how the CADASIL-stroke has affected your health and well-being?

We are interested in hearing from all CADASIL-stroke-survivors, no matter when they had their stroke, and no matter how healthy or well they feel.

To complete the anonymous survey, please click here

For more information, please contact contact Research Assistant: Mrs Lichin Lim – on (02) 9514 9295 or poststrokestudy@uts.edu.au

INTERVIEWS of people with CADASIL

Have you been diagnosed with CADASIL and have had a stroke?

If YES, would you be interested in discussing in detail how the CADASIL and stroke have affected your health and well-being?

We are interested in hearing from all CADASIL-stroke-survivors, no matter when they had their stroke, and no matter how healthy or well they feel.

For more information and to request a copy of the study information sheet, please contact

Research Assistant: Mrs Lichin Lim – on (02) 9514 9295 or poststrokestudy@uts.edu.au

Contact ACSN

Please feel free to contact us with any questions or enquiries you have